By Victoria Hart, Down Syndrome Association of West Michigan
Myth: All people with Down syndrome have a severe cognitive disability and cannot be active members of society.
Fact: Many people believe this. The misconception that Down syndrome affects all those with the condition identically and that, as a result, these individuals are unable to live independently or lead successful lives could not be further from the truth. At the Down Syndrome Association of West Michigan (DSAWM) we work every day to ensure that myth does not overshadow truth. Educating West Michigan about the condition is a critical part of advocacy.
So, what is Down syndrome? Down syndrome is a genetic condition in which an individual has three, rather than two, copies of the 21st chromosome. It is the most commonly occurring chromosomal abnormality and occurs in one of approximately every 700 births. Those with Down syndrome often experience cognitive delays and have several physical identifiers including low muscle tone, small stature, and an upward slant to the eyes.
While it is true that some people with Down syndrome have severe cognitive delays, for most the effect is usually mild to moderate. Many individuals are enrolled in general education programs, attend college, marry, and have jobs. Just ask our intern Allie! Allie is 25 years old and in addition to working with our organization, has two other jobs, is taking a college course, and spends her weekends skiing.
It is important to remember that each person with Down syndrome is unique. When we limit our understanding of the condition, we limit the opportunities for those affected. Quality education programs, a stimulating home environment, good health care, and positive support from family, friends, and the community help people with Down syndrome to develop their full potential and lead fulfilling lives.
World Down Syndrome Day is March 21st, in honor of the third copy of the 21st chromosome. On this day, individuals with Down syndrome and advocates across the world raise public awareness and advocate for inclusion with community events and conferences with lawmakers. And don’t be surprised if you see people wearing brightly colored or mismatched socks on World Down Syndrome Day. The #lotsofsocks campaign encourages participants to wear their funkiest socks to get people talking and asking questions about Down syndrome.
At DSAWM we can’t think of a better way to celebrate our favorite extra-chromosomed friends on World Down Syndrome Day than by throwing a party! On March 21st we will be hosting a ‘70s themed Rock Your Socks Dance to raise awareness and celebrate our loved ones with Down syndrome. DSAWM staff, members, family, and friends will be boogieing the night away with snacks, crafts, a photo booth, costume contest, and, of course, dancing!
Join us at the Masonic Center in downtown Grand Rapids at 6pm for the grooviest get-down in town. Check out the DSAWM Facebook page for more details and to learn more about our organization and the fantastic community of eager and inspiring individuals whom we serve.
For more information, please visit the following links.
Down Syndrome Association of West Michigan: Dsawm.org
National Down Syndrome Society: Ndss.org
World Down Syndrome Day: Worlddownsyndromeday.org
