By Joanne Bailey-Boorsma
WKTV Managing Editor
joanne@wktv.org
Some years ago, Nathan Hannum received the diagnosis that he had IgA nephropathy, also sometimes called Berger’s disease, that occurs when an antibody called immunoglobulin A (IgA) builds up in the kidney resulting in inflammation that can hamper the kidneys’ ability to filter waste from your blood.
It was a slow decline of kidney function, taking about 18 years for Hannum to drop to about 80% function and then in 2020, the decline started to take a steep dive, with him losing about 20% of functionality.
“So it was a pretty steep deal, but at the end of the year I was in a better position than a lot of other patients in that even though my function had gone down so far, I didn’t have to have dialysis,” he said.
When Hannum and his family moved to Grand Rapids about 15 years ago, he discovered there was only one renal kidney doctor’s office in Grand Rapids at that time, which was associated with the Trinity Health Kidney Transplant Center.
“I had been told I would probably want to get it done there just because it’s close to home,” Hannum said. “There are other options. We could have gone to the University of Michigan or Detroit or Chicago, but the ability to have the facility close to home was a big part of the decision.”
Marking a golden anniversary
The Trinity Health Kidney Transplant Center in Grand Rapids marks its 50th anniversary this year. There are six such centers in the state of Michigan with Trinity Health Kidney Transplant Center (formerly theMercy Health Saint Mary’s Kidney Transplant Center) being the only adult kidney transplant center on the west side of the state.
Since its opening in 1973, more than 2,800 kidney transplants have occurred, improving the lives not only of the patients but of their loved ones and caregivers.
“Our team takes great pride in reaching this 50-year milestone,” said Jill McNamara, MSN RN, Transplant services liaison for the Kidney Transplant Center. “One of the ways we are celebrating is to reflect on the patient stories that show our team just how many people have been touched by their care.”
Hannum admits he was one of those patients who benefitted from that expert care.
“You know sometimes you go in for procedures and they just start working on it and don’t really tell you what is going on. They might ask you what your name is to make sure they’re working on the right person,” Hannum said. “(The Trinity) nurses were fantastic at explaining ahead of time what was going to happen and why they were poking me for this and why they were asking me about that and the doctors were the same way.”
Hannum’s story
Hannum’s process started a couple of years before his surgery with doctors encouraging him to start compiling a list of potential donors. Having been a pastor for the past 25 years, Hannum, who is currently serving at Jenison Christian Church, has a network of contacts.
In 2022, the Trinity Health Kidney Transplant Center became the only adult transplant center in Michigan to partner with the National Kidney Register (NKR), the largest paired donation program in the world. The NKR has the largest living donor pool, making the likelihood of finding a match potentially faster than other paired programs.
“I sent a big ask to my friends and family and said if you are still interested, here’s the number to call and I was fortunate that a lot of them did,” Hannum said. “There were at least two matches and I think there were probably more than that for me.”
Once a donor was found, the next step was a series of tests, blood and others, to assure there were no underlying issues. It was through those tests, Hannum learned he had prostate cancer. While appreciative that it was discovered, especially since Hannum had no cancer symptoms, the diagnosis was a setback for Hannum, but only a couple months.
Finally cleared for the transplant surgery, Hannum said the next biggest hurdle was scheduling. The surgery took place in December of 2021.
Utilizing technological innovations
For patients like Hannum, Trinity Health Kidney Transplant Center offer one of the latest technological innovations, robotic live donor nephrectomy. This process has created even more opportunities for live kidney donation. A live kidney donation is when a kidney is removed from one healthy patient and donated to a patient who has renal/kidney failure. Previously, these nephrectomies were performed laparoscopically, using small incisions, with the surgeon using his hands during the procedure.
“With a robotic procedure, we still make incisions into the abdomen, but instead of using two hands, a surgeon has four robotic arms available at one time to also control the instruments and camera,” said Joel Stracke, DO, surgical director of the Kidney Transplant Center. “The nice thing about this approach is that we are able to make the large incision needed to remove the kidney much lower on the patient’s abdomen – under the pant line.”
The robot not only offers remarkable precision during surgery, but studies have shown that following a robotic donor nephrectomy, patients experience less pain and less need for narcotics.
Feeling like your 15 years younger
Every person responds differently to their transplant, Hannum said, adding that in his case, aftercare was mostly routine.
“The moment I woke up from my surgery, I felt better and my wife even told me even before I said anything. She said ‘Your eyes are brighter, and your skin color is different and it’s just amazing,’” he said. “ I can’t describe what it was like to be out of the ‘kidney fog’ just when you wake up.”
While there have been bumps along the way, a year later, Hannum said he feels 100% better, adding that he has felt 15 years younger this past year, “which is pretty fantastic.”
“Our main priority is to provide our patients with individualized, compassionate and expert care,” McNamara said. “Over the last 50 years, our program has become one of the largest and most successful community hospital-based transplant programs in the country. As we look forward to the next 50 years and beyond, we will continue to focus on our patients and their families, offering advanced surgical techniques and innovative donor options that offer more hope to our patients.”
The Trinity Health Kidney Transplant Center currently has six surgeons and five nephrologists. In 2022, it completed 102 transplant surgeries: 37 living donor recipients and 65 deceased donor recipients. There are approximately 300 patients at the center currently on the waiting list, 155 which were added last year.
To learn more about the Trinity Health Kidney Transplant Center or how to become a living kidney donor, visit www.TrinityHealthMichigan.org/Transplant
