By Care Resources
When it comes to coping and caring for someone with Alzheimer’s disease, it’s important at times to consider what you don’t say and do.
“People with Alzheimer’s live in a different reality once it advances,” says Paula Lett, social services manager at Care Resources, a Grand Rapids-based program for older adults that promotes healthy, independent living and helps prevent nursing home placement.
“In the beginning, they can be redirected, but as things progress, they’re stuck in a reality they’ve lived previously.”
The result can lead to extreme “agitation,” which can manifest itself in “getting upset, worked up and angry,” notes Ryanne Mondry, social services supervisor at Care Resources.
“That leads to confusion, miscommunication and misunderstandings.”
Stress levels can accelerate for both patients and caregivers. With Alzheimer’s expected to afflict nearly 13 million Americans by 2050 – the number now stands at some 7 million – it’s more important than ever to lean on education and advocacy for a disease that, according to the Alzheimer’s Association, is the fifth-leading cause of death among Americans 65 and older.
There are numerous strategies recommended for caregivers, including what Mondry says are telling “therapeutic white lies” to reduce stress in patients. For example, if a widower asks about seeing his wife, he shouldn’t be told she’s been dead five years, but instead that “she’s going to try to visit tomorrow.”
If they ask about the automobile they haven’t driven in the last year, things are apt to go more smoothly if they’re told “it’s in the shop for some minor repairs.”
Telling harsh truths might seem like the moral thing to do, but doing so can challenge the reality the disease has caused, and lead to traumatic episodes.
“It is generally best to redirect them than trying to make them remember what’s really going on, as that can really escalate things,” Lett says.
Lett and Mondry offer these additional tips for coping:
- Ask the patient if they’re hungry, thirsty or tired. They might be unable to recognize basic needs.
- Be aware of their blood-sugar levels.
- Pay attention to their hygiene needs. Some with Alzheimer’s resist showering. Encourage a calming bath instead.
- Try a change of scenery. Bring them into a quiet space. Take them for a walk or a drive. Play some music.
Lett and Mondry agree that caregivers also must understand that patients aren’t intentionally trying to be difficult in moments of increased agitation.
“Their brains have actually changed, and they sometimes become different people,” Lett says.
Mondry adds, “They can become more impulsive, engage in colorful language, and say and do things that are totally out of character.”
Both professionals agree it’s critical for caregivers to take care of themselves, too. Mondry compares it to the instructions given on flights where if the masks drop from above, capable adults need to put theirs on before assisting others.
“It’s easy to become burned out, and that can lead to unintentional neglect toward the person you’re supposed to be caring for,” Lett says. “Go for a walk, get enough sleep or join a support group.”
Mondry and Lett also suggest visiting a place like Care Resources, where there are wraparound support services for adults 55 years and older to give caregivers respite. Several team members have gone through comprehensive dementia care training developed by renowned dementia educator Teepa Snow to achieve a range of Positive Approach to Care® dementia certifications. These certifications allow staff to provide quality direct dementia care to participants, as well as and conduct ongoing dementia care training for other team members.
The organization’s day center at 4150 Kalamazoo Ave. SE invites participants to visit, enjoy a meal and socialize. Individuals may also be eligible for medical care, prescription help, dietary advice, physical and occupational therapy, transportation and much more. For more information, call Care Resources at 616-913-2006 or visit CareResources.org
