Tag Archives: caregiver

Are you a caregiver? Take care of yourself, too

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Joining social groups and establishing their own support network is an essential component to a caregiver’s quality of life. (Courtesy Spectrum Health Beat)

By Robert Preidt, HealthDay


If you’re a caregiver for a family member, you need to look after your own mental health to provide the best care for others, an expert says.


Caregivers are at increased risk for depression and anxiety.


Clinically significant symptoms of depression occur in 40%-70% of caregivers, and major depression occurs in 25%-50% of these caregivers, according to the Family Caregiver Alliance.


“Taking time to care for yourself is not selfish. In order to have the strength to care for a loved one, it is extremely important that caregivers take care of their own physical and mental health,” said Dr. Vassilios Latoussakis, a psychiatrist at Gracie Square Hospital, a psychiatric facility in New York City.


Latoussakis offered the following advice.


Pay attention to your stress levels, he said in a hospital news release. If you find yourself crying, losing your temper or having fantasies of rescue or flight, seek help.


Stress can affect your physical health, causing problems such as headaches, sleep issues, heart troubles, high blood pressure, and elevated fat and sugar levels.


If you’re feeling the effects of stress, make an appointment with your primary care provider, Latoussakis advised.


There are a number of ways to reduce stress, including regular physical activity, relaxation techniques such as breathing, yoga or mindfulness, making time to see friends and doing activities you enjoy.


It’s important to have a support network of people with whom you can talk, confide and gripe.


Another good idea is to join a support group of caregivers where you can share concerns, practical issues and problems, Latoussakis said.


More than 34 million Americans have provided unpaid care to an adult aged 50 or older in the past year, according to the National Alliance for Caregiving and AARP.


Reprinted with permission from Spectrum Health Beat.



Caregiver challenge: Needs double as end of life nears

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By Maureen Salamon, HealthDay

 

Reliance on caregivers doubles as people near death, and half of those caregivers—typically unpaid family members—report having no time for themselves, a new study indicates.

 

The research used a nationally representative sample of about 2,400 older adults in the United States. The study authors found that caregivers provided nearly twice the number of hours of help each week to dying individuals than to those not at the end of life.

 

“We were certainly aware when dealing with end-of-life care that families are mostly involved, but we couldn’t quantify that prior to this [research],” said study author Dr. Katherine Ornstein. She’s an assistant professor of geriatrics and palliative medicine at the Icahn School of Medicine at Mount Sinai in New York City.

 

More than 34 million Americans provided unpaid care to an adult aged 50 or older in the past 12 months, according to 2015 figures from the National Alliance for Caregiving and AARP. Most caregivers are female.

 

Ornstein and her team drew from two nationally representative surveys in which caregivers in the United States reported their experiences caring for dying adults over age 65. The researchers contrasted this data with that of other caregivers providing ongoing care.

 

Older adults were classified as being at the end of life if they died within 12 months of the surveys’ completion.

 

The study found that dying adults had an average of 2.5 caregivers assisting them. Those near the end of life received 61 hours of help per week compared to 35 hours of help per week for older adults who weren’t at the end of life.

 

More than one-third of the end-of-life caregivers reported physical difficulty related to their duties. Just over half reported having no time for themselves. These figures were 21 percent and 40 percent, respectively, for other caregivers.

 

Nearly nine in 10 caregivers are unpaid, according to the study. For end-of-life caregivers who were spouses, nearly two-thirds reported receiving no help from family or friends.

 

“What we see now is, on average, there are 2.5 people helping someone at the end of life. You can imagine if they don’t have that, it’s much more difficult,” Ornstein said. “When spouses are serving as caregivers, the majority are reporting doing it alone and have the [most challenging] consequences.”

 

Barbara Coombs Lee is president of Compassion & Choices, a Washington, D.C.-based advocacy organization for patients’ rights and end-of-life issues. She pointed out that the caregivers surveyed in the new study didn’t necessarily know ahead of time that the person they were caring for was at the end of life.

 

This lack of awareness may have increased caregivers’ stress levels, she said.

 

“This told me the caregivers were probably struggling, not knowing this was an end-of-life situation. Our [organization’s] research indicates that uncertainty about decision-making is an inherent and extremely powerful source of stress,” Lee said.

 

“I would guess that many of these people didn’t know they were dying … so they pursued heroic, torturous, futile treatment,” she added. “Often the default decision [to continue treatment] increases the caregiver burden.”

 

Ornstein said she hopes greater awareness of the family burden of caregiving, especially at the end of life, comes from her research.

 

“We need to think about expanding access to palliative care services, which can help facilitate the delivery of supportive services to families earlier,” she added. “And we can see how we need to provide more paid family leave so families can provide the support we’re pretty much expecting them to provide.”

 

Lee agreed with the need for expanded access to hospice and palliative care.

 

“One of the big barriers to access to hospice is [an] information gap,” Lee said. “People don’t understand that hospice is appropriate to them in their journey in their illness. Palliative care utilization would go up if people had more candid conversations and were privy to information that physicians have but aren’t sharing.”

 

The study was published in the journal Health Affairs.

 

Reprinted with permission from Spectrum Health Beat.

Self-care for parents and caregivers

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By Kylie Rymanowicz, Michigan State University Extension

 

Raising young children can be stressful and from time to time it can take its toll on parents and other caregivers. Self-care is a crucial way to ensure adults caring for young children are prepared to invest the time and energy they need to be the best caregivers they can be. If you aren’t taking care of yourself, you may not have much left to give your children.

 

Michigan State University Extension has some suggestions for making sure parents and caregivers take the time for self-care.

 

Make sure your basic needs are met. In the hustle of trying to take care of young children, the needs of parents and caregivers often get overlooked. Think about the energy you invest in making sure your child’s needs are met. You make sure they get enough to drink and eat, provide enough time for them to get the restful sleep they need as well as the exercise and time to play—do you do the same for yourself?

 

Make it a routine. Just like you develop routines for your child, make self-care part of your daily routine. Come up with simple routines you can do to help you relax and unwind and take care of yourself. Maybe it’s taking a quick walk by yourself a few days a week or making time to bake if that’s a hobby you enjoy.

 

Start small. Big changes can seem intimidating, so don’t think of increasing your self-care as something big you have to do overnight. Break up the task into small pieces and find something small to start with, like challenging yourself to drinking less caffeine to help you sleep better at night. Try writing down your goals and keeping track of your efforts—this can help motivate you to keep going and is a great way to see your progress. Once you have incorporated that change, try making another small change.

 

Model self-care for your child. Let your child know what you’re doing and why self-care is so important. You can tell them, “This is Daddy’s time to himself. When I go for a walk alone it gives me time to think and helps me feel calm and relaxed.” Children learn from watching us and when we show them we value self-care, they learn to value it too.

 

Investing in your own well-being is a way to invest in your child’s well-being. Take the time to nurture yourself so you have the energy and motivation to nurture your child.

 

For more articles on child development, academic success, parenting and life skill development, please visit the Michigan State University Extension website.

 

To learn about the positive impact children and families experience due to MSU Extension programs, read our 2017 impact report. Additional impact reports, highlighting even more ways Michigan 4-H and MSU Extension positively impacted individuals and communities in 2017, can be downloaded from the Michigan 4-H website.

 

This article was published by Michigan State University Extension. For more information, visit http://www.msue.msu.edu. To have a digest of information delivered straight to your email inbox, visit http://www.msue.msu.edu/newsletters. To contact an expert in your area, visit http://expert.msue.msu.edu, or call 888-MSUE4MI (888-678-3464).

Caregiving for spouses and partners

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By Diane Rellinger, Michigan State University Extension

 

Becoming a caregiver for your spouse or partner can have a profound effect on your relationship.

 

Traditional marriage vows tenderly express commitment to love each other through the best that life brings as well as well as through the worst of times. As the journey of life continues, spouses and partners confidently face a barrage of changes and transitions together. Over time and through partnership efforts routines, roles and expectations naturally become established.

Identifying role changes and challenges

Changes in the physical, mental or emotional health of a spouse or partner can have a profound effect on relationships. This can include one partner taking on the role of caregiver of the other.

 

Regardless if the caregiving role developed gradually or if circumstances occurred that changed life instantly, navigating daily life and assuming and accepting the role of caregiver includes navigating both good and bad days. Grief, loneliness, anxiety and exhaustion are all natural feelings that spousal caregivers can experience as they tirelessly try to meet the needs of their loved one. Assuming unfamiliar tasks that their spouse usually completed previously and adding daily care responsibilities, often while still employed, is stressful and can take a toll on a caregivers’ health.

The isolation associated with caregiving

Spouse and partner caregiving is a labor of love. Loyalty is a significant factor that drives caregivers. Spouses often believe they should tackle caregiving single-handedly and do not readily accept offers of assistance from family and friends. Caregivers may feel they can provide the best care for their spouse and do not ask for additional help even when they are feeling overwhelmed. Most care recipients prefer their spouse to be their care provider. Yet care recipients are often dealing with multiple and ongoing health changes that make their own behaviors and needs unpredictable and sometimes challenging. Care recipients may experience a wide array of feelings like anger, grief and depression that spousal caregivers have to attempt to navigate on a daily basis.

 

Caregivers may experience varying degrees of guilt as they navigate and mourn the loss of what once was normal, and grapple with life as it is now. Pouring oneself into the daily care of another can also lead to isolation as caregivers slowly pull away from social engagements to spend most of their time at home. As a spouse or partner attempts to care solely for their loved one the risk of injury and other negative health factors can begin to appear in the caregiver, which can be amplified by age. It is typical for a spousal caregiver to neglect their own self-care in pursuit of immersing themselves in caring for their spouse.

Caregivers benefit from community resources and support

Every spousal or partner caregiver should be aware that they can equip themselves with new skills and knowledge through education and community support. This can help caregivers confidently provide care with sufficient help and also maintain their own self-care.

 

Most caregivers and care recipients experience continual transitions in their relationship and Michigan State University Extension highly encourages caregivers to seek support and help to find systems that benefit both individuals. There are evidence-based community programs designed to assist caregivers, including spousal caregivers, to maintain their own mental, emotional and physical health. The Powerful Tools for Caregivers program designed specifically for caregivers will increase self-care habits; build confidence in handling numerous caregiver responsibilities like making difficult decisions, dealing with challenging emotions and finding local community resources. To learn about the Powerful Tools for Caregivers program in Michigan contact your local MSU Extension office.

 

This article was published by Michigan State University Extension. For more information, visit http://www.msue.msu.edu. To have a digest of information delivered straight to your email inbox, visit http://www.msue.msu.edu/newsletters. To contact an expert in your area, visit http://expert.msue.msu.edu, or call 888-MSUE4MI (888-678-3464).

Caring for the Caregiver During the Holidays

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By Regina Salmi, Area Agency on Aging of Western Michigan

 

Given that almost 20% of the population in the United States is aged 60+ and that more than 5 million people in the United States live with some form of dementia, it is likely that we have at least one person in our family who is a caregiver. We may not recognize them as being a caregiver — we might look at it as mom taking care of dad, or the sister who drives mom and dad places since she lives nearby.

 

As the holiday season comes into full swing, the caregiving role can take on added stress. Reaching out to caregivers and helping them plan for holiday festivities can go a long way toward helping the caregiver and their loved ones enjoy the holidays alongside family and friends.

 

We can begin by helping to choose holiday activities. As invitations arrive, it can be challenging for a caregiver to decide what to accept and what to decline. An evening out with old friends might be something the caregiver would like to do, but might be difficult for their loved one to attend. A family gathering might require a long trip and an overnight stay. Having family in for the weekend might be overwhelming for caregiver and loved one, alike. Some people might decide the amount of planning required is too much and decide to just stay home.

 

Social isolation is an unfortunate reality for many caregivers and their loved ones. It doesn’t have to be this way though. Julie Alicki, Certified Advanced Dementia Practitioner, agrees.

 

“Particularly in people with dementia, the tendency is to want to isolate, but being included in gatherings is beautiful,” Alicki said. “It allows them the opportunity to be social and this is important.”

 

Planning is key in helping caregivers approach the holiday season. Sitting down with a caregiver and mapping out the holidays can help us plan in advance for how we’re going to manage the holidays. Sarah Sobel, LMSW, AAAWM Caregiver Services & Contract Administrator has a suggestion.

 

“Decide what invitations the caregiver would like to accept and, of those, which events the loved one would like to attend and start from there,” she said.

 

Knowing in advance what events will be attended helps with the next phase, which is to make plans for each event — a Plan A, Plan B and even a C just in case. This will help determine what resources and assistance will need to be put in place ahead of time, so the person in the caregiving role does not feel that they’ve been left in a lurch.

 

For example, if there is a large family gathering, a person with dementia may require a quiet place to go when things become loud or chaotic. Arranging this in advance will help the caregiver be able to relax and enjoy, knowing there is a plan in place.

 

Alicki said, “When getting together as a family, if there are big, important things planned to take place, like gift opening, move those to the beginning of the gathering so both the caregiver and loved one can participate, and they can leave when necessary without missing out.”

 

Caregivers often put their needs second, third or last to other people in their life. Offering the caregiver some relief would make a tremendous gift for the holidays.

 

“Caregiving is stressful and the holidays can add to that stress. It is important for caregivers to do self-care,” Sobel said.

 

How can friends and family help with this? Having a friend or family member stay with a loved one for a weekend would offer the caregiver the freedom to get away for some rest and time for themselves or stepping in for a day so the caregiver can take in a concert or do some shopping. Arranging for professional in-home care can also provide some relief for a caregiver.

 

“This also clues the rest of the family in on what the caregiver is going through — it keeps them in the loop,” said Alicki.

 

Try to make the holidays guilt-free for caregivers.

 

“Caregiving for someone every day can be so unpredictable. It’s important that plans are flexible,” Sobel said.

 

If a caregiver needs to leave a gathering early, let them know how happy you are that you got to spend time with them rather than how disappointed you are that they have to leave. If traveling is too much, consider changing the location of a gathering to accommodate them. If a plan needs to be cancelled, be understanding.

 

During the holidays, like everyone else, caregivers and the loved ones they care for want to be involved in holiday festivities: attending parties, gatherings, concerts and events. The holidays are time to connect with friends, relatives who live states away, nieces, nephews, grandchildren, etc. Those who care for caregivers can help the holiday season be an enjoyable one by offering support, participating in planning, and sharing in the responsibilities of caregiving.

 

If you need help making in-home care or respite arrangements, contact Area Agency on Aging of Western Michigan at 888.456.5664 or aaainfo@aaawm.org.

 

 

 

When Should I Call Hospice?

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File photo

By Peg Cochran, Holland Home

 

One of the statements hospice workers hear most often is “I wish I’d called hospice sooner”. What is hospice care and when should I seek it out?

 

What is Hospice Care?
Hospice care is a set of specialized services to help patients and their loved ones cope with advanced or terminal illness. The focus of hospice care is on improving the patient’s and families’ quality of life though a specialized team which can include doctors, nurses, home health aides, social workers, spiritual care providers and other professionals like nutritionists and therapists. Hospice care can provide support and comfort for both patients and families.

 

Benefits to the Patient
It’s easier to face changes in life when you are prepared. Bringing hospice on board early in the process of a long-term illness means you won’t be scrambling to get services when you reach a crisis and you’ll be able to take advantage of all the support hospice care offers.

 

“Starting hospice early offers the patient better quality of life, especially since their pain and problematic symptoms can be brought under control. Some hospice patients still drive and still go to work,” says Rene Wheaton, administrator of Faith Hospice. “When they reach a point where they need us, we’re already there to help.”

 

File photo

Benefits to Caregivers
Hospice offers benefits to caregivers as well. Caregivers can become burned out, particularly If the patient has waited too long to sign on to hospice care. Hospice staff can provide help.

  • Hospice staff can educate the caregiver, as well as answer questions that may come up — for example, can the patient be safely left alone or can they still drive?
  • Hospice nurses and aides monitor and recognize changes in the patient’s condition that may not be obvious to the caregiver.
  • Hospice staff includes trained volunteers able to provide short-term respite for caregivers.

Hospice Support
Hospice brings an entire team of professionals and volunteers ready to provide help and support.

  • Medical professionals, including doctors who are board certified in hospice and palliative care, as well as nurses trained in hospice care. The medical team is experienced in pain control and symptom relief.
  • Chaplains are available to provide spiritual support to the patient and their family, if desired.
  • Social workers can help with the practical and emotional needs of the patient and their family.
  • Through hospice, aides can come to your home to help with personal care.

“There are so many benefits to bringing in hospice as soon as a patient has received a life-limiting diagnosis,” said Wheaton. “The services provided can greatly increase quality of life for both the patient and their family. We have even had people go off hospice because they have improved so much, often because they were able to leave the hospital and return home to familiar surroundings and loving family members.”