Tag Archives: Taylor Ballek

‘When she’s happy, I’m happy’

 

By Sue Thoms, Spectrum Health Beat

Photos by Taylor Ballek, Spectrum Health Beat

 

Alyssa D’Agostino can endure a lot: a battle against breast cancer, then leukemia, then a relapse of leukemia.

 

But when she realized she would not be home for her daughter Gianna’s ninth birthday—that drove her to tears.

 

“We have to do something.”

 

Katie Celentino heard that message over and over again from staff members at the bone marrow transplant unit at Spectrum Health Butterworth Hospital, touched by D’Agostino’s sorrow.

 

And so they did. In 24 hours, they pulled together a purple unicorn party that left Gianna nearly speechless.

 

The little girl burst into the staff room for the party with a big “Oh!” as she whirled around, taking in the birthday banner, a unicorn drawing on the whiteboard, party hats and a table brimming with colorfully wrapped presents. Nurses and nurse technicians greeted her with a lively round of “Happy Birthday!”

 

D’Agostino sat beside her daughter, eyes sparkling above her yellow face mask. She wore her party attire, a green tinted wig and a headband decorated with a silver unicorn horn and peach flowers.

 

“This is so amazing,” she said. “I’m blown away big-time.”

 

Diagnosed with breast cancer in 2015, D’Agostino underwent surgery and chemotherapy and emerged a survivor.

 

Photo by Taylor Ballek, Spectrum Health Beat

In July 2017, she learned she had acute myeloid leukemia. It went into remission, but resurfaced in April 2018. Again, she was hospitalized as she began chemotherapy treatments.

 

In late August, she went to Butterworth Hospital, with plans to get the disease back into remission so she could undergo a bone marrow transplant.

 

Five straight months in a hospital: That has been her spring, summer and autumn.

 

She hoped she would be home for Gianna’s birthday. She had gifts and planned a surprise celebration with family. When she learned that would not happen, she said, “I was devastated.”

And then, she learned a party was in the works on the fifth floor of Butterworth Hospital.

 

Celentino, the nurse manager, said staff members eagerly joined together to make the day special. Nurses came in on their day off or stayed after their shifts ended. Nurse technician Courtney Fend used her artistic skills to create a birthday banner and unicorn drawing.

 

Sharing Gianna’s big day was deeply rewarding for the staff, Celentino said.

 

“We don’t always get to see these moments,” she said. “These are the things that matter to our patients. This is why they matter to us.”

A gift of happiness

Photo by Taylor Ballek, Spectrum Health Beat

Gianna, a third-grader at Chandler Woods Charter Academy in Belmont, Michigan, came to the party with her grandmother, Alice D’Agostino. She wore her Halloween costume—a purple and black outfit with a purple wig. She dressed as Mal from the Disney movie Descendants.

 

Her mom’s gift made the outfit complete. She gave Gianna a pair of black boots, just like Mal’s.

 

Gianna bubbled with enthusiasm as she opened her gifts: sparkly pencils and coloring books, fluffy unicorn pajamas, card games, glittery nail polish, hair chalk, a jewelry box and a kit for making her own jewelry.

 

She thanked everyone and went around the room giving hugs.

 

Gianna then sat beside her mom and they wrapped their arms around each other.

 

D’Agostino said the celebration exceeded all her expectations. And seeing her daughter’s happiness was a gift in itself.

 

“I just loved seeing her face light up,” she said. “When she’s happy, I’m happy. Doing something special for her just makes me feel good.”

‘It’s good for everybody’s heart’

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Story and photos by Taylor Ballek, Spectrum Health Beat

 

West Michigan’s favorite miniature horse, Charlie, trotted into Spectrum Health Helen DeVos Children’s Hospital recently to visit some special kiddos.

 

Leah Davidson, 9, rolled down the hall in her hospital bed to visit Charlie in the playroom. Her mom and staff pushed her bed up to the door and Charlie walked up to the side of her bed to get some love from Leah.

 

She is being treated for osteogenesis imperfecta, a group of inherited disorders characterized by fragile bones that break easily. She smiled from ear to ear as she touched his nose, whispering, “Hi, Charlie.”

 

Photo by Taylor Ballek, Spectrum Health Beat

Charlie’s owner, Ronica Froese, especially enjoys Charlie’s visits to the hospital. They started their therapy visits in 2015 when Charlie was just a year old.

 

“I said if my horse can do this, this is what I want to do with my life,” Froese said. “And it turns out (Charlie) was made for the job.”

 

Froese handed out cards with Charlie’s hoof print on them, as well as small plush horses with Band-Aids on their legs that read, “Get well.”

 

Several children enjoyed their visit with the handsome miniature horse, who sports sneakers and a great attitude.

 

Froese’s favorite part is seeing the children’s big smiles.

 

“It’s good for everybody’s heart,” Froese said.

 

The Child Life team at Helen DeVos Children’s Hospital is always looking for community visitors to bring activities and events to the hospital for patients. If you are interested in having your group host an event, more information is available online.

 

Reprinted with permission from Spectrum Health Beat.

‘I just don’t have the energy I used to have’

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Photos by Taylor Ballek, Spectrum Health Beath

 

By Marie Havenga, Spectrum Health Beat

 

Diane Peterman tried everything.

 

She ordered remedies off the internet. She used over-the-counter medications that worked for friends. She visited multiple doctors in Northern Michigan near her Onaway home not far from the Mackinac Bridge.

 

But nothing could stop the hot flashes, night sweats, sleeplessness, weight gain and lack of energy she suffered during menopause.

 

“I started menopause three-and-a-half years ago,” Peterman said.

 

Life hasn’t been the same since.

 

She averaged 25 hot flashes or night sweats a day. Scalding. Miserable.

 

“All my friends in menopause said, ‘Try estrogen,’” Peterman said. “When I went on estrogen, the hot flashes disappeared.”

 

But another issue surfaced: migraine headaches.

 

She tried cutting the estrogen patch in half for a lower dosage. Migraines continued. She tried a quarter of a patch. Same result.

 

Peterman, who has worked for over three decades as a school superintendent’s administrative assistant, said the condition messed with her daily life.

 

“I saw a neurologist,” she said. “He checked for a brain tumor because I had visual migraines, with auras and pressure. They call it vascular migraines. They affect your vision and ability to drive.”

 

The neurologist ran multiple scans before finally discovering the culprit.

 

“He asked, ‘Are you by chance on an estrogen patch?’” Peterman said. “I took it off and threw it away. That was no longer an option for me.”

 

But what was? She needed to find someone who understood her symptoms and could assist.

 

“I tried cutting all caffeine out and exercising more,” she said. “I have no energy and just don’t feel good. No matter what you do or where you go, you are uncomfortable. I’ve never had anything like this and was so frustrated.”

 

She increased her exercise. Decreased her calories. Weight loss remained elusive.

 

“I wear a Fitbit to keep track of my steps, but it also keeps track of how many times you are up in the night and I averaged eight times a night. It gets to the point where I am just exhausted. I just pray my daughters don’t go through this.”

 

Frustrating. Tiring. But always warm.

 

“Some days I just hate the way I feel because I’m so sick of burning up and being sweaty,” she said.

Staying cool

In the winter, she keeps her bedroom thermostat at 50 degrees because of night sweats. Her husband piles on the blankets to keep warm.

 

“My husband (Tom) can look at me and tell,” Peterman said. “You can’t even disguise them. I use cool washcloths on my neck, dress in layers and drink a lot of ice water. I have bought a cooling mattress, cooling mattress pad and cooling pillows. If it said ‘cool,’ I bought it.”

 

She has spent more than $1,000 in search of a solution. But nothing worked. She knew it. Her husband knew it.

 

“When a hot flash starts, I go out on the porch in the winter and you can see the steam come off my body,” she said.

 

Perhaps not only physical steam, but emotional and spiritual steam.

 

With hope evaporating, and options dwindling, frustration built.

 

Peterman’s daughter, who lives near Grand Rapids and works at Spectrum Health was aware of unique services in Women’s Health and recommended the Midlife, Menopause and Sexual Health practice.

 

Peterman made an appointment with Natasha Peoples, NP-C, NCMP, a Spectrum Health Medical Group advanced practice provider who is specialty trained and nationally certified in caring for patients with menopause concerns.

 

“My daughter said you need to see a menopause specialist, your symptoms are extreme and beyond normal,” Peterman said. “My glasses were steaming up my hot flashes were so bad.”

 

Peterman had her first appointment with Peoples in late December.

 

Peoples took her off the medication another doctor had prescribed and put her on a new medication that other menopausal women found helpful.

 

Peterman said her hot flashes have dropped to about half of what she used to have, and she has also lost some weight.

 

For the first time in a long time, she feels hope.

 

“I keep a gratitude journal,” Peterman said. “I’ve always been a very positive person, happy and busy. It’s not that I’m depressed. I just don’t have the energy I used to have.”

 

Her seven grandchildren, with whom she spends as much time as possible, spur her on.

 

“I want to have energy to keep up with the seven grandchildren without struggling,” she said.

 

She credits Peoples for leading her on the first steps to improvement. Finally she felt “heard.” After three and a half years of chasing remedies, she’s experiencing her first symptom relief under People’s care.

 

“She’s a very sweet, compassionate person who is also very knowledgeable,” Peterman said. “Since she is a menopause specialist, this is what she does all day long and she sees every situation. She has already helped me and I’m hopeful she will continue to help me improve so I can get back the quality of life I had before.”

Complicated journeys

Menopause is different for every woman, according to Peoples, but Peterman’s journey has been particularly challenging.

 

“Diane’s symptoms are somewhat complicated due to the fact that she has hormone-mediated migraines, so hormone therapy is not an option for her,” Peoples said. “It’s not uncommon to experience the most severe and disruptive symptoms in the years just before or after the final menstrual period, as is the case for Diane.”

 

Making lifestyle changes and switching medications helped Peterman.

 

“Learning her triggers and patterns for hot flashes has been helpful,” Peoples said. “Being aware of how her daily habits can make a difference is a motivating factor. Her hot flashes have improved.”

 

Peoples said menopause transition symptoms—hot flashes, night sweats, difficulty sleeping, mood changes, vaginal dryness, decreased libido and irregular bleeding—are like an out-of-control roller coaster ride, “one that we hope to help them navigate.”

 

While some menopausal symptoms are genetic—think, “How was menopause for my mother?”—other symptoms can be related to lifestyle, according to Peoples.

 

“They are more severe for women who drink caffeine or don’t drink enough water, for those who don’t exercise and those who smoke,” Peoples said. “Weight gain and poor sleep can both be caused by menopause but also contribute to worsening symptoms.”

 

For women suffering from severe symptoms, it’s important for them to realize they are not alone.

 

“We all do it differently, but we all do it,” Peoples said. “Talk to your peers, talk to your provider and come and talk with us. We hope to help empower women to make the transition in a way that maximizes health and minimizes distress and discomfort.”

 

Take a hard look at your daily habits.

 

“Drink water, keep a good sleep schedule, exercise regularly, make healthy diet choices—watch out for sugar—and practice meditation or mindfulness,” Peoples said. “All of these choices will make a difference.”

 

Reprinted with permission from Spectrum Health.